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The reader is moved to tears by the story of a 1.2kg baby’s short life. The journey from conception to the last moments of the little angel was chronicled by Mother Eline on her Instagram status line.
Eline Leonie despite being so tiny, she sets an example to the whole world of strength and love for life. Eline Leonie was born on November 14, 2019, weighed 1200 grams and measured 38cm. Eline was diagnosed with neonatal progeria when she was born.
Progeria is an incredibly rare and debilitating genetic disorder that causes children to age rapidly. It’s a condition that affects only a handful of people around the world, and for those who have it, life can be a constant struggle. It is also known as ‘hutchinson-gilford syndrome’ and usually occurs after the age of 2 years. However, Eline’s neonatal progeria appeared in her life immediately.
She wrote :” From the 20th week of pregnancy, it is clear that Eline is not like ‘normal’ babies. The belly is much smaller than usual, and the heart is too big. She went to an ultrasound. The doctor suggested an amniocentesis should be tested but I declined the offer.
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Eline was born at 16:26 on November 14 weighing 1200 grams and measured 38cm. ELine Leonie-Her mother gave her the name Eline Leonie because she believes, hopes, and wishes for her baby to still fight for her life, as well as her mother’s prayer and safety for her little daughter.
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After 100 days in the hospital , the mother and daughter were finally discharged on February 21, 2020. Mom Eline was very excited, happy, happy, A feeling of indescribable happiness, mixed joy, little insecurity.
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