Singer and international superstar Celine Dion, who earlier this year canceled all tour dates through 2024 due to a rare neurological disease called Stiff-Person Syndrome, continues to suffer uncontrollable and painful muscle spasms, her sister tells a Canadian publication.
In a new interview with Hello! Canada magazine, Claudette Dion called her sister “a strong woman” who is “doing everything to recover” from the illness, but with no known cure the family can do little but hope medical researchers evetually “find a remedy for this awful illness.”
“It’s an illness we know so little about,” Claudette Dion tells the publication. “There are spasms – they’re impossible to control. You know who people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles. There’s little we can do to support her, to alleviate her pain.”
Stiff-Person Syndrome is a rare, progressive neurological disorder that causes muscle stiffness in the torso, arms and legs. The rare condition strikes about one in a million people.
The Grammy-winning “My Heart Will Go On” singer disclosed the diagnosis in December 2022 when she canceled European tour dates scheduled for February 2023. In May of this year, she canceled the entire 2023-2024 tour.
The Las Vegas-based singer has largely remained out of the public spotlight since making the cancelation announcement on Instagram in May.
Celine Dion is doing “everything to recover” in the face of intense pain after being diagnosed with stiff person syndrome, her sister has said.
In December, the “My Heart Will Go On” singer shared that she had been diagnosed with the incurable neurological condition, and was cancelling her forthcoming tour dates.
Half a year later, in May, Dion, 55, pulled the remaining dates of her world tour. The Canadian musician said that she was “working really hard to build back my strength”, adding: “I want you all to know, I’m not giving up.”
Speaking in a new interview, her sister Claudette shared that Celine is doing “everything to recover” following her diagnosis.
“She’s doing everything to recover,” Claudette told Hello! Canada, adding: “She’s a strong woman.”
Discussing her sister’s experiences with Stiff Person Syndrome – “an illness we know so little about” – Claudette said that the family could do “little” to “alleviate her pain”.
“There are spasms – they’re impossible to control,” she said. “You know who people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles. There’s little we can do to support her, to alleviate her pain.”
Claudette said that their sister Linda is living with Celine at her Las Vegas home, which was “comforting for us all”.
“We’re crossing our fingers that researchers will find a remedy for this awful illness,” she added. “We love her for the person she is.”
Stiff Person Syndrome is an autoimmune and neurological disorder that causes rigidity in the torso and limbs. Symptoms include stiffening in the torso and limbs, along with muscle spasms, which have affected Dion’s ability to sing and perform.
Symptoms can be triggered by environmental stimuli (like loud noises) or emotional stress. Severe muscle spasms can cause the person to fall down. These symptoms can lead to difficulty walking and over time, even greater disability.
The condition is estimated to affect roughly one in a million people.
Last month, Claudette offered fans another update on her sister’s health. Then, she shared that the family remained hopeful despite them not being able to “find any medicine that works”.
“[Celine is] listening to the top researchers in the field of this rare disease as much as possible,” she said. “I honestly think that she mostly needs to rest. She always goes above and beyond; she always tries to be the best and top of her game.”
Of her sister’s decision to take a break from performing, Claudette added: “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”
